Wednesday, May 27, 2009

Schools out and we are ready for summer! Gentry had his weekly lab draw yesterday and we learned about our new round of chemo that he will be starting next week. It is all oral, 6 1/2 pills every 6 hours for 24 hours. Basically he will have his lab drawn every Tuesday. Then on Wed. I have to call to check on his blood counts and as long as his numbers look good then we start the chemo on Wed. nights. He will get 6 1/2 pills at 6 pm, midnight, 6 am Thurs. mornings and noon on Thursdays. Then Friday at 6 pm and Sat. 6 am he will get his "rescue" drug that stops the chemo. We have been taking it every time we have chemo and without it his organs will start shutting down. Everything is very time regimented. The pills can be chewed or even crushed up and put in something so that should help since getting a 3 year old to take 1 pill is hard but 6 1/2 at one time would be impossible. He has been feeling pretty good but is still hit or miss on eating and sleeping but not having any problems expressing his anger!!! At least he has a fighting spirit. I put on a picture of him with his very last backpack chemo treatment and one of him cooking for me with his kitchen. Brooks is doing great and getting the hang of eating with a spoon. He has a checkup and shots next week. He is a big boy! Loves to eat all the time.  We don't have anything big planned this summer. Just going to hang out and relax. Keep us in your thoughts and prayers.









Sunday, May 3, 2009





















OMG-I am catching a lot of grief for not updating the blog in over a month. Sorry, things have been hectic. Gentry's surgery went really well and he did a great job this time taking the "sleepy" medicine ahead of time. It made it much easier on all of us since he was pretty loopy by the time they wheeled him off. So far so good with this new line. Hopefully it will be
the last one. Treatment has been going pretty good. Some days are easier than others but that is expected. This week should be his last "backpack" week and last spinal for 12 weeks!!!! We are going to 
surprise him with a new bike. Brooks is doing great and growing like crazy. He has a checkup the end of May. He has discovered his feet when he is laying down and lifts his legs up. Cracks us up every time. Friday night my school hosted a family Bingo night and it was great. They are donating the profits to Gentry's Wellness Fund. We were very overwhelmed with the generosity of the people who organized it and those who donated prizes. There were several thousand dollars in prizes given away including free dental work, private golf lessons, limo rides, cleaning service and tons more. And Gentry had a great time spinning the wheel of bingo balls around during the games. We are so thankful to have so many people supporting us. Even though Gentry's treatment is going well it is still a battle everyday. We couldn't image going through this without all this support. Keep your fingers crossed that treatment goes well this week and we can move on to the next phase.