A day in the life....

Well this week was one of those weeks where chemo didn't go as well as we like. Monday started off with our daycare provider having a kidney stone attack so I had to leave school and pick the boys up. Luckily, Dr. Rosen was able to squeeze us in that morning so we didn't have to get back out later that day since it was snowing. So Tues. Jerry stayed home with the boys while I went to school. We met up for Gentry's cardiologist appt. which went great. His heart is functioning at 100% and it's size is just right. We were so relieved. Then I had to go back to work for conferences. Gentry did great taking his chemo pills last night but really struggled this morning. I figured it was because he was super tired but got a call around noon from daycare that he had thrown up right after taking his afternoon pills. So I call Dr. Rosen and he says he has to take another dose. So I spend more time calling the pharmacy trying to get another dose and get over to Ms. Carol's and Gentry won't take the medicine. He said he was sick of it and wasn't going to do it. Oh my, it was a rough afternoon. Luckily, Mr. Gary told Gentry that he would get him some jelly beans if he took his medicine. Gentry, being quite the negotiator, agreed. So we got his meds in him, I went back to work and finished out the day and now I am exhausted. I wonder what it will be like to not be so tired all the time....

Sorry it's been so long...

With so many people on Facebook I got the impression that most
people weren't keeping up with the blog.
But lately I have had many people ask why I haven't updated it....so I'm back! I forget
how therapeutic it is for me to blog. Right now Gentry is doing great. He is still on the oral chemo round. Every other week on Tues. nights, starting at 6 pm he takes 6 1/2 pills, then again at midnight, 6 am and noon. It is exhausting and we feel like we live by the clock. The battle of a 4 year old and trying to get him to take pills is impossible!!! There are weeks where everyone is crying and other weeks where it goes so smoothly that it freaks me out. A dear friend from school made Gentry an AWESOME poster that looks like a game board that leads to Shamu and he puts a Shamu sticker on it every time he takes his medicine. He is getting very excited about our trip to Orlando in March now that he can see that it is getting closer. He also take a "rescue drug" Thurs. night and Friday morning during chemo week. Gentry is still taking a daily medicine and also has steroids every 12 weeks. His spinal taps are every 12 weeks and the last one (in Nov.) was the best one yet. He barely fought us on it and just cried a little. Dr. Rosen is so happy with how Gentry is responding to his treatment. We see Dr. Rosen every week and his blood counts continue to improve.

Brooks is great and just turned 1. He is very busy and always wants to be wherever Gentry is. We had a great holiday and both boys made it through without any colds/flu etc. Gentry was asked by the Leukemia & Lymphoma Society to be the "Boy of the year" for the annual Man and Woman of the Year campaign. It is a huge honor and a great experience as we help the fantastic candidates raise money for LLS. So far we have been to several events and it will culminate in June with the Grand Finale which is a huge party! I will definitely keep everyone posted. Keep up the prayers, we still need them! We are so thankful for all the love and support!